Tuesday, June 29, 2010

My Life on the A-List

Disclaimer: Say what you will, but I very much enjoy Kathy Griffin and her show, My Life on the D-List. I've borrowed the title for my post only because I was reminded of my own life on the D-list yesterday afternoon at my first physical therapy appointment.

Before I begin, if you should be compelled to classify my social status, please just quietly note that I hover somewhere between the B- and C-lists, with an occasional, usually food-related, foray into D-list territory. Oh sure, I know a thing or two about A-list life and do, from time to time, enjoy the finer things; but truth is, most of the time I languish further down the alphabet.

While going over my health history with the Medical Physiologist yesterday I realized that, at least where cancer is concerned, I'm living a top-drawer, A-list, champagne and roses life. All because of my amazing oncology team.

Let me explain. Have you ever the been guest of someone you don't really know all that well? Even so, you agree to hang out with her (or him if you prefer) because she's fun to kick it with and well, the invitation to go to say, Maui (in my case, Seattle) is just to good to pass up? An hey, who doesn't love an all-expense-paid (in my case, not so much) vacation?

When you arrive in Maui though, it turns out your friend is all tied up with appointments and meetings - so you're on your own for those spa appointments, guided hikes to the volcano fields, and deep jungle water falls; not to mention that you'll be spending more than a few meals dining solo.

But, and here's the cool thing, every time an esthetician, a field guide or a server finds out that you are with so and so, the service factor goes up - way up. I mean after all, if you're with him, well you must be someone special too.

"Oh, you're with Barrack? Let me exchange that Korbet for the Dom."

Very A-list.

Transfer all that to Pill Hill in Seattle, where I'm spending several hours a week traipsing around the various hospitals and medical centers that populate one of Seattle's oldest neighborhoods and earning it it's endearing nickname. Instead of chatting up spa employees and field guides though, I'm hanging out with nurses, phlebotomists, medical techs, doctors and more medical receptionists than I could begin to count.

Standard procedure in each and every appointment is to ascertain my name, date of birth, age (actually yes, they ask my age right after my dob. seriously) primary care doc and my surgeon. Every time. Even if I just gave all that info to your receptionist twenty minutes ago.

I noticed early on that people would subtly raise their eyebrow's when I uttered the name of my primary care doc. Ever so subtle. But it was there. In the case of my surgeon the looks were more noticeable.

"Your surgeon, Mrs. Namba?"

"Patti -D*"

And there it is: back straightens, nose tips slightly down, head turns just a bit to the right, eyebrows go up and eyes open wide and peer over glasses.

"Really?" Then under their breath. "Hm."
"Can I get you anything - water perhaps?"

OK, that last line is a bit of an exaggeration, but not much. Every time I mention her name I have a new best friend. A most impressive experience was right before my mastectomy. The nurse whom I'll never see again had gone through the litany of questions, implanted the IV, given me a nice little pat and wished me well. But just before taking her absence, she paused and asked:

"How did you ever get Doctor D for your surgeon? She's the best you know." Telling, not asking.
"Your in very good hands."

No, I didn't know, but I'm beginning to get the idea.

On and on it goes over The Hill, everybody gushes about my surgeon, oncologist and primary doc.

Yesterday was no different. Doctor Z, renowned in his own right, couldn't stop the gush. Though he's worked with all three women before, it seems it's the first time he's had all three of them on one patient and he's very honored to part of this "amazing assembly of talent." Nope, not making this up either.

"It's very fortuitous that you are here in this place, with these people, at this time." This to a cancer patient!

What else can I say? I've got a Dream-Team of Docs.

What else would one expect when you're on the A-list? Watch out Mr. Bon, a girl could get used this end of the alphabet!

~~~
(*Name changed to protect her privacy)

Wednesday, June 23, 2010

Kickin' Cancer's Butt - The Update

Hello-Hello!

Much has passed since I last visited you here at the bon blog.

Many novels have been read, many, many,many wonderful meals have been prepared for us and much enjoyed by us, many gifts and cards have come to our doorstep and mailbox and many friends have come to visit.

On the medical side, many scalpels, needles, radio-active isotopes, grenade-sized drains and all manner of sci-fi have passed through my body in the last 6 weeks. Gone is my left breast (surgery 1 on 5/17), gone are a bunch of nodes from my left armpit (surgery 2, 3 weeks later) and gone is the cancer (no kidding - more on that in a minute).

Within the breast removed, the pathology revealed one bigger mass (visualize a marble, maybe the shooter) one smaller mass (think of a pea here) and a few suspicious shadows. Of the three nodes that were also removed at that surgery, 2 were perfectly clear but one contained a micro-static metastasis (insert heavy sigh here). Knowing cancer to be a fierce opponent, the doc recommended going back to the O.R. and removing a few more nodes and having a look at those.

Even though it's a very common procedure under these circumstances, go right ahead and insert another heavy sigh here. I know mr. bon and I did. Then we said "go ahead doc, do what ya' gotta do to make it all go away."

Second surgery occurred 3 weeks to the date after the first surgery. Really. Just as I was beginning to feel like myself again, I got to go in for another round. But, as I may have mentioned, I too am a fierce opponent with a far fiercer team, so off I went to the land of magical naps for an axillary lymph node dissection; mr bon and sister by my side, dutiful daughter/nurse at the ready to spoon feed me sliced bananas and keep my water pitcher filled to the brim upon my return home.

As the first, this surgery went very well - though the pain factor was much higher and required more management - still not really all that debilitating.

By the end of the week, the doc called with the good news - no cancer in those nodes!

Upon hearing this news, It was my mom who immediately drew the wise conclusion and proclaimed that I was cancer free. When I asked the surgeon about this at the follow-up few days later she confirmed "you have no measurable cancer in your body."

Yay!

But -

Cancer is ... you know ... fierce.
So we must keep fighting to insure the cure.

Enter round 2: Chemotherapy.

Before you go gettin' all "damn" and "poor bon" and really down on chemotherapy - remember it is our friend, even, our team member- it is what will make me a survivor.

So bring it on.

And bring it they will. For 12 months, I'll be receiving a weekly dose of Herceptor - a relatively easy drug to take with little or no side effects. Additionally, for the first 4 months, I'll be receiving 2 other meds whose names escape me at the moment. Their effects will be noticeable, as in start shopping for doo-rags now and plan for serious sofa-time a few days after each dose. Luckily, those tough guys are given at 3 week intervals, rather than weekly.

I've been told time and time again by docs, nurses, and patients that the most common and felt side affect will be fatigue. We can manage fatigue - we got this!

You're wondering when the gong will sound for round 2?

Well, that's the best news of all.
Not until July 12th. By my calculations, that's about 3 weeks from now - 3 glorious weeks living cancer-free. But even more importantly, and here is the news that some of you have really been waiting for --- that is 3 days after my nephew's wedding!

Double Yay!